tag:blogger.com,1999:blog-6887629233710217681.post1711545746212562762..comments2023-07-14T04:54:17.221-05:00Comments on sky-circles: Pain's graspTamrahttp://www.blogger.com/profile/13788932363826493441noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6887629233710217681.post-87792423197102194142013-01-26T22:51:03.448-06:002013-01-26T22:51:03.448-06:00And remember
I have no existence apart from you... And remember<br />I have no existence apart from you<br /><br />I love this line!!<br /><br />I'm glad to see you back! I know exactly what you mean about the rise and fall of dealing with pain, and I completely agree with your statement about how it's okay to let pain sideline us for a while. Because the energy to fight it off does come around again, and it's senseless to try to push through the pain when there is no shame or loss in pausing to recoup our energy.<br /><br />Good luck this semester!! I'm glad you have a good suppot system.Estherhttps://www.blogger.com/profile/13231523634115523348noreply@blogger.comtag:blogger.com,1999:blog-6887629233710217681.post-51074658142881393962013-01-24T12:50:24.565-06:002013-01-24T12:50:24.565-06:00After having a baby by C-sec. I commuted 2 hours e...After having a baby by C-sec. I commuted 2 hours each work "shift", hiked, swam, skied,raked, shoveled for 18 yrs.<br />In 2006 I felt strange spasms in my rectum while driving home home from work. What had been a 40 minute commute had become an hour.<br />After I got out of the car I was fine. If I drove an hour or more later, no spasms?<br />I saw my G.P. and I told her about the spasms.I told her that I was never constipated.Stool samples had no blood in them.The doctor felt I should have a colonoscopy.<br />This routine test in my case exacerbated the nerve compression that was happening in my right pelvis<br />A year later that I had an acute case of pudendal, anal and rectal nerve compressions. Nerves that had caught up in scars had moved due to me being so active and had tethered indolently to a ligament in my lower right buttock.<br />Do you have pudendal neuralgia that is not life sustaining? I had to stand for 3 years as I could not sit or lie down. Physiotherapy made it worse. <br /> One needs to sleep and not be bothered by nocturia( night peeing )that leaves one in burning pain and unable to return to slumber.<br />Meditation, breathing and praying will not heal this condition.<br />Pudendal nerve blocks done properly under imaging by an expert is needed. After even one done correctly, the suspect pudendal nerve can be identified and there IS pain relief. I felt electrocuted for 11 months until I had my first block!<br />I had to be assertive in seeking a help from a neurologist elsewhere. He told me what the treatment plan is for someone like me. My pain specialist would have none of it?<br />I wanted to live. I wanted to heal and get back to a job I loved. No one would help me? <br />I eventually got to the MAPS pain clinic in Edina, Minnesota and Dr. Stanley Antolak did the testing and a block and "confirmed" I had a right pudenal compression neuropathy and that I needed more blocks and possibly surgery.<br />Guess what? My province paid the $20,000.00 for this wonderful specialist to firmly diagnose me, I was brushed off again. My G.P. did not believe it and my pain specialist dropped me!I had been left standing all day and on ineffective medicines with no sleep for 1.5 years!!! <br />I was being sent back to work and I knew I could not perform any of the tasks involved so I emailed the Minnesotan doctor. <br />He saved my life and sent papers on my case to two new pain specialists. They played games and paperwork that should have been sent to an expert neurosurgeon and to the Ministry of Health did not get sent?! Why not? I was near dying at this point from fatigue and frustration as the pain is unbearable and I was tired of standing all the time.<br />Due to having faith, God put me in the path of a registered nurse consultant. I did not look for her;she came my way.<br />Within 4 months of hiring her, paperwork that should have been seen by the only neurosurgeon who does nerve releases in my province( and who works at the very hospital I have for 28 years!!! ) allowed for me to finally get the surgery I had needed since February 2008...the last day I have been able to sit.<br />I am slowly getting better. I live the way Dr. Antolak told me to with his self care and when I do I do not have "flare ups". If I lift anything heavy, if I sit in a recliner longer for too long...I get flare ups. I can sit in the car with a heating pas on low for 10 minutes.<br />After 12 months of slow walking I started aqua size classes and I pace myself. I want to get some muscle strength back.<br />I am also paying myself to get laser therapy and to get injections into the scar, rectum and anus with vitamin B1, B6 and B12. It is slowly helping. I can sit in the bathtub!!<br />I highly recommend the surgery for sufferers whose nerve blocks did not alleviate the pain and for those who cannot sit and know they were active in their youth and adulthood. My surgery found three nerves attached to a ligament...those nerves were released. I pray you get a second chance at life like I did. I do not know how I survived. Peace and may you find a doctor who will be open to surgery...most will not.Anonymousnoreply@blogger.com