"Birds make great sky-circles
of their freedom.
How do they learn it?
They fall, and falling,
they are given wings."

-Rumi (translated by Coleman Barks)

Tuesday, May 6, 2008

Physical Therapy, Part Two

Yesterday was my second physical therapy section and it did not go well. Like the last visit, I was taken into a private room and had to insert the sensor. For some reason, it took me a lot longer than my last visit. I talked with my physical therapist about the sensor for awhile. She said she has worked with many VVS patients and is still mystified why there is only one size fits all sensor. No one has taken the time to patent small sensors for women with chronic pain who have difficulty using the sensor. I'm so angry and tired of the medical community ignoring my problem and refusing to make small and easy technological advancements.

I did the three basic exercises last time, and saw some improvement in my resting rate. My therapist also said that resting rates vary with hormonal levels, so it's difficult to note changes over a woman's month cycle. But, I didn't have as much pain during and after the exercises, so I was happy. Then, we did a fourth exercise where I had to tighten my pelvic muscles for two seconds and then rest for two seconds and repeat for about a minute. The first four seconds I was doing fine, and then all of a sudden, my muscles began to spasm. Not only did I feel them, but I saw my levels go crazy on the computer. And as much as I tried to focus on my breathing and not look at the computer and relax, I couldn't get the spasms under control for the rest of the exercise. This was the end of my session, but I had to wait before going home because I was in too much pain. The spasms continued on and off throughout the day, but the direct pain relented after 20 minutes. 

I was upset after therapy but I've been doing better since then. I am just tired of trying things that will "make things easier." I want to be cured. But, I know that things will get better; I still have other options and there are just too many things for me to look forward to. My semester is almost over and I'm leaving for Tanzania in exactly 2 weeks. I have two more visits to physical therapy before I leave, so we will see how things pan out. 

4 comments:

Anonymous said...

i have to say this pysiotherapist does not sound good. there are good pt's out there and shitty ones. if you find a shitty one they wont help you. the basic protocal for a first visit with be a hands on examination with the therpist pushing on certain pelvic floor muscles, then working to find trigger points.

u might want to join the group 'happy pelvis' on yahoo groups. its a group of women going to therapists for the same thing as you and many are pain free and well now. they would know of a good therapist for you to go to in your area.

best of luck! :)

Anonymous said...

It sounds like your pysiotherapist was having you do kegals. These are a definate no no for someone with pelvic floor muscles that are already tight. It would definatly make things worse!

I would recommend trying a different therapist.

Anonymous said...

I agree, find a different therapist, don't you spend time in Chicago? There is an excellent PT there named Rhonda Kotarinos.

Anonymous said...

I too broke down in tears with Velma Weitz, but at least with her I had a name for my condition (VVS). I had already been to about ten different doctors, from urologists to gynocologists, all who said "We don't know" or "Try this medication" or "Take this and have sex, and if you haven't in six weeks, then call the office and we will reschedule". I also had ended my relationship with my then boyfriend, and had to go through it by myself. My mom was broken-hearted when I finally told her that I wasn't the virgin daughter that she wanted me to be, but she thinks I did this to myself because of having sex. I felt like a lab rat, always trying different medications; at age 22 I was given anti-anxiety meds to take an hour before "relations". I would go a year without having sex, and then would get drunk and sleep with someone inappropriate, as that was the only way I could bear 'exposing' myself. I had sex yesterday, for the first time in a year, sober, and did my damndest not to grimace or cry or stop. Today I went to our buddies at Hahnemann and yet again, was given Elavil. I am going to give it a shot, and hopefully it won't make me totally different like last time. I made progress, I didn't cry, during sex or at the doc. I was told that I will need to use lube every time that I attempt to have intercourse, but there is hope. I am trying to stay positive this time around, and beat this thing that has been physically and psychologically kicking my ass for the past five years.