I'm really good at being sick. Right now I feel my full-time job is keeping my body together in one piece. No one wants that.
I'm so sick of writing emails to professors and dropping out of commitments last minute. The worst is no one ever gives me a hard time. It feels like everyone just understands that this is my life. I don't like those low expectations. I want responsibility. I want a routine. I want boring days. I want to stop writing and ranting.
I went for a run yesterday afternoon. The same route in my neighborhood I've done for countless weeks now. Let me tell you- I was killing that route too. Down to 8:30 miles for a 2.5 course, with plenty of energy at the end to do an extra mile loop. Killing it. Yesterday I jumped in the pool after my run, as I always do. All of a sudden I could not stop itching my face. Then I felt it change and it started to hurt badly from all the pressure of the swelling. All of my lymph system swelled up and turned bright red. My sister made her first 911 call. Turns out ambulances take forever, so we jumped in the car and raced to the ER. Also turns out when your face is swelling up like a large watermelon, you get seen right away. I got on an IV with a heavy duty cocktail of steroids and benedryl (by one of the hottest nurses ever I might add.) In fact, I was almost high enough from all the medication to start asking him how many patients told him he was beautiful every day.
I got discharged a few hours later, and rushed home to get my psych paper in on time for an online class. I hate the way medication changes you so quickly. The steroids were giving me severe mood swings, the benedryl made me tired and unintelligent. It brought back bad memories of college and being on different medications and having people come over to help me write and type my papers. I thought I'd never have to be that helpless again.
Today I saw my primary doctor and made an appointment with the allergist tomorrow. I'm under strict orders not to go outside. My primary told me I really need to stop having weird things happen to me. I had another small outbreak just from going to the car to get the doctors this morning. My body seems to be on high alert for any allergens, thus the bubble girl status. I did not feel well today so I had to let my professor know I couldn't take my anatomy exam tonight. Tomorrow I have two big tests, and there's no option to stay home. Summer classes, especially science classes are almost impossible to miss.
We now have to stop the laser stim and the iontophoresis treatments at physical therapy until we figure out what's going on. So once again, my main problems get put on the back burner. When the triage nurse at the hospital asked me if I had any preexisting conditions or any surgeries done, I just stared at her with the typical puppy dog eyes. I am so sick of hospitals. I had to tell Mr. Hot RN exactly what vein to put the IV in because the rest tend to move. You're not supposed to know these things when you're 23. I'm supposed to be worrying about moving out of my parents' house and getting into good dpt programs and where I'm going to meet my next boyfriend. At this point, I am only concerned with making it through the day in as little pain and medical drama as possible. I want more.
[/endrant]
PS. I need a hug.
I was a chronic pelvic pain patient who wrote about my health struggles for 7 years. After successful treatment and returning to school, I am about to become a women's health physical therapist. Some estimate 5% of women as well as millions of men will experience pelvic pain in their lifetime, yet they are under-researched, misdiagnosed, and misunderstood. In the midst of rapidly evolving medical discoveries and technology, priority needs to be given to pelvic pain.
"Birds make great sky-circles
of their freedom.
How do they learn it?
They fall, and falling,
they are given wings."
-Rumi (translated by Coleman Barks)
of their freedom.
How do they learn it?
They fall, and falling,
they are given wings."
-Rumi (translated by Coleman Barks)
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2 comments:
Hi Tamra, My name is Raul and i just wanted to let you know that your struggle and activism was/is an amazing display of courage and endurance. Your story on True Life was very interesting to watch. I like people like you who have that sense of will power, all the best.
P.S you are very beautiful.
Later.
Tamra, Dont give up. you can get through this hell. Let that damn pain be your fuel, and show it that theirs no chance in hell it will be the end of you, Believe it! C'mon Tamra!
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